Exploring Facilitators of Regaining Autonomy in People with Spinal Cord Injury: A Qualitative Study

Abstract

One of the most important aims of rehabilitation in Spinal Cord Injuries (SCI) is regaining autonomy, which can affect individuals’ Quality of Life (QOL). This study was conducted to understand the experiences of individuals with SCI in terms of regaining autonomy during transition from hospital to community. Materials and Methods: The present study was conducted using a qualitative research design. In this study, 15 semi‑structured, in‑depth interviews were conducted with individuals with SCI in Spinal Cord Injury (SCI) Association of Arak, Iran, from June 2018 to May 2019. The interviews were analyzed using the conventional content analysis method. Results: Data analysis emerged four core categories of “self‑management” (adaptation to a new life, self‑care, responsibility, and seeking information), “social support” (family and friends’ support, health care providers’ support, and peer support), “access to facilities and resources” (home modification, use of various rehabilitation techniques, and use of mobility equipment), and “spiritual and religious beliefs” (believing in divine destiny and performance of religious rites). Conclusions: The present study showed that several factors influenced the regaining of autonomy in individuals with SCI. It is important to consider the impact of these factors during transition from hospital to community. Health service providers can use the findings of this research to help these individuals regain their autonomy.