Heavy Burdens of Family Caregivers Caring for Persons with Severe Mental Disorders

Abstract

Family caregivers who live with and care for individuals with severe mental disorders face serious issues. This study aimed to investigate the burdens of these family caregivers. This descriptive phenomenological study involved 15 family caregivers who looked after persons with mental disorders in Malang City, Indonesia; the participants were selected using a purposive sampling technique. Data were gathered using individual in-depth interviews and observations, and then analyzed inductively. Based on the findings, the burdens of family caregivers can be grouped into four main themes: 1) families encountered challenges and stigma in caring for persons with severe mental disorders, 2) there was a lack of support from the community and healthcare providers, 3) family caregivers reported experiencing various negative emotions and interpreting negative implications from their caregiving experiences, and 4) family caregivers employed coping strategies to alleviate their burdens. The researchers conclude that family caregivers experience complex burdens when caring for persons with severe mental disorders; hence, family caregivers need the support of healthcare personnel and community presence in situations of caring for persons with chronic mental disorders